The Society for Mucopolysaccharide Diseases (the MPS Society) is a voluntary support group founded in 1982, which represents from throughout the UK over 1200 children and adults suffering from Mucopolysaccharide and Related Lysosomal Diseases including Fabry Disease, their families, carers and professionals. Life Membership is open to open to individuals 18 years and over who meet agreed criteria. The Society was registered as a charity in May 1983. In 2011 whilst remaining a registered charity, the Society changed its unincorporated charitable status to a charitable company limited by guarantee. The Society is the registered charity dedicated to the support of those affected by Mucopolysaccharide and Related Diseases and is entirely supported by voluntary donations and fundraising. It is managed by its Life Members who constitute over three quarters of the Board of Directors. The Society has the following aims:

• To act as a support network for those affected by MPS & Related Diseases
• To bring about more public awareness of MPS & Related Diseases
• To promote and support research into MPS & Related Diseases