Society for Mucopolysaccharide Diseases
MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP, UK
Tel: 0845 389 9901 Fax: 0845 389 9902
National Registered Charity No. 287034

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Since 1980 the Society has maintained a research database to identify the incidence of Mucopolysaccharide and Related conditions in the United Kingdom.

In the period of 1974 to 1991 there have been 13,820,825 children born in the UK. These figures represent a mean annual birth rate of 737,823. In the same period a minimum incidence of 511 diagnoses of MPS diseases were recorded representing a mean annual birth rate of 28.4. This represents our overall minimum incidence of MPS and related diseases of 1:26,000, with specific incidences as follows:

Hurler: 1:115,000
Hunter: 1:166,000
Sanfilippo: 1:89,000
Morquio: 1:220,000