Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Welcome to MPS

MPS Awareness Day 2010


Help us celebrate MPS Awareness Day on 15 May 2010

Awareness RibbonEach year the Society celebrates MPS Awareness Day on 15 May. This is a day devoted to raising awareness of MPS and Related Diseases and many of the International MPS Societies participate in this special day.

Does your workplace, your friends, relatives or neighbours support a chosen charity? Why not tell them about MPS? Or are you organising a fundraising event? Help us spread the word about MPS and raise funds to provide vital services...

Use MPS Awareness Day, 15 May 2010 to tell everyone you know about MPS. Don't forget to tell us how you're planning to celebrate MPS Awareness Day, maybe we can help...

Download our MPS Awareness Flyer here.

Can you help with our media campaign?

Do you ever wish that more people knew what you meant when you started talking about MPS or Fabry? One way to help change this is to spread awareness through the media - newspapers, magazines, TV and radio for example. We are looking to promote MPS Awareness Day through the media and need your help. Would you be willing to provide a case study, a story about your or your family's experience of living with MPS or Fabry? Perhaps you have an unusual story about receiving the diagnosis, have achieved something amazing with MPS or Fabry, are thinking of doing some fundraising, or simply want to tell your story. To find out more please email us.

Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Jeans for Genes
Jeans for Genes is a UK Children’s Charity that aims to change the world for children with genetic disorders.

Jeans for Genes is an annual fundraising event and this year it takes place on 1 October 2010. Ask your colleagues at work or the children at school to wear their jeans on the Day and make a donation. Visit www.jeansforgenesday.com to sign up for a FREE fundraising pack.

Jeans for Genes provides funding for the care and support of children with genetic disorders. They also help to fund research into genetics and the development of effective treatments and cures. Each year they offer funding to a range of charities.

 

Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Volunteering
Looking for a fun and rewarding challenge where you could also pick up new skills or gain valuable work experience? We are always looking for childcare volunteers to support our children and adults at events so why not give it a go!
Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
How your money helps
Your financial support is vital to us. Find out how we spend your money to support those who need us.
Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
Donate Now!

Every penny helps us to support those affected by MPS and related diseases. We are dependent on donations from individuals, companies and organisations. You can make a difference!

Society for Mucopolysaccharide Diseases (the MPS Society)
Society for Mucopolysaccharide Diseases (the MPS Society)
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