 
 Society for Mucopolysaccharide © 2009
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  Events
BackgroundThe idea of families coming together is to share support, to give support and to enjoy each other’s company. The idea was first conceived in 1986 and by 1987 it became a reality. Every year since then, the Society has had the privilege to offer families and individuals the opportunity to support each other in this way. Many individuals and families suffer isolation when a rare condition like one of the MPS or related diseases is diagnosed. They can often feel shut off and very much alone. Imagine for one moment telling someone your child has MPS or Fabry disease, the normal response is a total blank, confusion or even embarrassment. The result can be isolation. MPS Society events for families and individuals affected by MPS and related diseases break down the isolation, enable experiences to be exchanged, bring understanding, care and support and for many, the development of lasting friendships. Regional Events 2010Birmingham Family Day, Cadbury World: 12 September London Family Event: 16 October |
