Principles underpinning the advocacy support service
The Individual Advocacy Support Service upholds and works within all relevant legislation including Disability Discrimination, Human Rights and Children’s legislation as well as codes of practice including the Code of Practice for Social Care Workers.
Integral to the aims of the support provided are the principles of:
- Tackling inequality and promoting equality. This includes promoting the needs of those with rare diseases as well as upholding the rights of all sections of the community to a needs led, culturally sensitive service.
- Confidentiality. The MPS Society has a detailed confidentiality policy which is upheld at all times when providing individual advocacy support. Of particular relevance when working with individuals with rare diseases is that identification of an individual is frequently possible on the smallest amount of information, a factor that is fully addressed in the support offered.
- Needs led advocacy. The aim of the support is not to do for individuals and families but to promote self-help by the skilled imparting of information and relevant skills.
Key aims of support
Areas of support provided by the advocacy team
MPS regional clinic programme
Support following diagnosis
Clinical management
Palliative care, pre/post bereavement support
Advocacy Case Studies
