Society for Mucopolysaccharide Diseases
MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP, UK
Tel: 0845 389 9901 Fax: 0845 389 9902
National Registered Charity No. 287034
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Information Resource
The Society is pleased to have published a range of information resources for individual members, their families, carers and professionals. As the Society is only a small charity with considerable commitments to both research programmes and advocacy support, whilst we seek to reach as wide a readership as possible, we simply cannot absorb the growing costs without charging a contribution towards printing and postage.
For further information call the MPS Society or click here to download a comprehensive order form.
Specific Disease Booklets
Each booklet in the 'Guide to Understanding...' series introduces the disease, its causes and inheritance. A detailed clinical presentation with options for managing and treating specific symptoms is given with guidance on general management of issues including diet, drugs and physiotherapy. There are sections on living with a child or adult affected by the particular disease and a final section which covers specific treatments for the condition where they exist. The booklets are produced by the MPS Society drawing on the knowledge and experience of parents and doctors with reference to medical literature.
Disease Progression Booklets 
These booklets are produced specifically for professionals working with children and adults affected by an MPS or Related Disease. Through photographs of the same child at different ages, the booklets demonstrate the progressive nature of each disease.
Booklets for Children
Written for children with an MPS or Related Disease, or their siblings, these booklets are designed for children aged 5 years and over. Each colourful booklet uses large print to give age appropriate information about the disease and its effects. They are an invaluable tool for use in schools to support children in understanding more about these diseases.
Information Sheets
These sheets are written by the Advocacy Support Team to provide further important information on key issues on which the advocacy service provide support.
Disability Living Allowance
Travel Insurance
MPS Diseases and Life Insurance
Annual Report and Accounts
The Annual Review 2006 is now available. Click here for more information.
Strategic Plan 2005-2010
The MPS Society is committed to developing our support to those affected by MPS and Related Diseases. We have compiled a Strategic Plan 2005-2010 setting out our vision and objectives for the coming years.
Copyright
In order to protect both the Society and our members our publications are registered for copyright. The Society will not consent to the translation, lending or copying of any of its publications in whole or in part without our prior written agreement.
