Register an MPS Sufferer

Society for Mucopolysaccharide Diseases
MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP, UK
Tel: 0845 389 9901 Fax: 0845 389 9902
National Registered Charity No. 287034

Those diagnosed with an MPS or Related Disease or their parents where the individuals is under 18 years of age, are invited to submit their details below for the purpose of being entered on the confidential UK Registry. Registering here will also enable individuals and their families to receive membership details and appropriate support from the MPS Society. This support may include information on the specific disease including current and future therapies, advocacy support and the befrienders scheme. Please use the comments section to tell us about any specific information you require.

Please only register one MPS sufferer per form.

First Name
Surname
Addressee (if different)
Full Address
Email/Telephone No.
Please tell us if you are
Disease Type
Date of Birth
Date of Diagnosis
Diagnosing Hospital
Comments